Psychosocial Support

Prevention of Hemophilia: Carrier Detection and Prenatal Diagnosis

Effective treatment for hemophilia exists. This allows, potentially, complete social integration and a good quality of life. But if the children suffering from hemophilia are not educated to compete, by stimulating their resources and a positive view of themselves, it will be very difficult for them to assert their place in the world. In this section, let's look at the various factors that either have a positiveinfluence (Protection factors) or negative influence (Risk Factors) on the lifeof hemophilic children. And let's look at how we can reinforce the positive protectionfactors.

Risk Factors Risks are all those circumstances and conditions making the patient with hemophilia susceptible to accidents and / or reduced well-being. There are three main psycho social risk groups: Personal risks - related to behaviour and personality of the person with hemophilia Family risks - related to family educational patterns Educational and Social risks - related to certain social scenarios that threaten the well-being of children with hemophilia