Hemophilia, a complex genetic condition, disrupts the body's natural clotting mechanism, leading to prolonged bleeding episodes after injuries, even minor ones, and potential spontaneous bleeding into joints and muscles. It is characterized by a deficiency or absence of specific clotting factors in the blood, such as factor VIII (hemophilia A) or factor IX (hemophilia B).
This deficiency impairs the blood's ability to clot effectively, perpetuating the risk of bleeding episodes. While there is no cure for hemophilia, significant advancements in treatment have enabled individuals with this condition to lead active and fulfilling lives.
The primary cause of hemophilia is genetic inheritance, where individuals inherit the defective gene responsible for producing clotting factors from their parents. Hemophilia is an X-linked recessive disorder, meaning it primarily affects males. Females typically carry the defective gene on one of their X chromosomes but may not exhibit symptoms themselves. In rare cases, hemophilia can also occur due to spontaneous mutations in the genes responsible for clotting factor production.
To create a environment where individuals affected by hemophilia have access to comprehensive care, support, and resources, enabling them to live fulfilling and empowered lives.
Our mission is to provide holistic support to individuals and families impacted by hemophilia. We strive to offer education, advocacy, affordable treatment options, and psycho-social support, with the ultimate goal of improving the quality of life for those living with hemophilia.
We prioritize placing the needs and well-being of individuals and families affected by Hemophilia at the forefront of everything we do. This extends beyond treatment, encompassing emotional and social support throughout their journey. This aligns with our philosophy's focus on long-term, holistic care that goes beyond just medical intervention.
We believe in collaboration with healthcare professionals, other NGOs, and government agencies to create a comprehensive support system. This collaboration reflects the LET philosophy's emphasis on building a strong network of support for patients, ensuring access to a variety of resources.
We strive to stay informed about the latest advancements in Hemophilia treatment and research, and advocate for their accessibility ensuring access to the latest treatment options.
We are committed to creating a safe and welcoming space for everyone affected by Hemophilia, regardless of background or circumstance. This aligns with the LET philosophy's emphasis on building a supportive community where everyone feels included and endowed.
We are dedicated to supporting individuals and families living with Hemophilia. We strive to provide comprehensive care, accessible education, affordable treatment options, robust psycho- social support, and economic rehabilitation services to enhance the quality of life for individuals living with hemophilia, ensuring a life free from disability and pain.
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